BARDET-BIEDL Syndrome International
Connecting people affected by the syndrome of Bardet-Biedl worldwide
BBS International is a federation that will enable us to collaborate together on a global scale, to unite efforts, to collect and publish information on the disease, to increase network cooperation, to improve research by avoiding unnecessary duplication.
Created on 03 October 2020 by 5 countries (France, USA, UK, Italy, Netherlands). Members are active national patient organisations representing patients and their families affected by BBS. Together, they are the voice of approximately 40,000 patients worldwide.
About BBS FOUNDATION
Network
To find and build a network of all associations and families of people with BBS .
Coordinate
Coordinate international research efforts.
Promote
Promote, support and stimulate the exchange of knowledge and understanding of BBS at the international level.
Facilitate
Facilitating and promoting communication.
Our TEAM
Véronique HELOIR
Presidente
Francis LESTEL
Vice-President
Patricia Dawn HATCHER
Secretary
Grégory BOUETEL
Treasurer