Médecin et patient

BARDET-BIEDL Syndrome International

Connecting people affected by the syndrome of Bardet-Biedl worldwide

BBS International is a federation that will enable us to collaborate together on a global scale, to unite efforts, to collect and publish information on the disease, to increase network cooperation, to improve research by avoiding unnecessary duplication.

Created on 03 October 2020 by 5 countries (France, USA, UK, Italy, Netherlands). Members are active national patient organisations representing patients and their families affected by BBS. Together, they are the voice of approximately 40,000 patients worldwide. 

 

About BBS FOUNDATION

Les gens d'affaires applaudissent
scientifique
Bibliothèque
Poignées de main

Network

To find and build a network of all associations and families of people with BBS .

Coordinate

Coordinate international research efforts.

Promote

Promote, support and stimulate the exchange of knowledge and understanding of BBS at the international level.

Facilitate

Facilitating and promoting communication.

Our TEAM

 
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Véronique HELOIR

Presidente

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Francis LESTEL

Vice-President

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Patricia Dawn HATCHER

Secretary

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Grégory BOUETEL

Treasurer

Contact US

 

Thank you for your sending !

Bardet-Biedl Syndrome International

3 route des Essarts

26240 SAINT-UZE

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