Our MEMBERS

 

 

When a rare disease invades your life, whether you yourself have the syndrome or are the parent of a child suffering from it, the world falls apart under your feet. You have to relearn everything, adapt everything, make it work....

 

Living with a rare disease like Bardet-Biedl Syndrome can sometimes be incredibly overwhelming and isolating,

but it is important to remember that whether you are living with the syndrome yourself or caring for someone with it, you are not alone.  

On this page you can find a list of all the countries where there is a Bardet-Biedl group, or other Bardet-Biedl patient support group.

Click on the logo to display the website, social media page or e-mail address of your national Bardet-Biedl patient support group.

logo BBS2.jpg

FRANCE

Association BARDET-BIEDL

                 3 route des Essarts

                 26240 SAINT-UZE

                presidence.bbs@gmail.com

Sans titre2.jpg

UNITED STATES

BARDET-BIEDL Syndrome Foundation

                 

                 

                timothy.ogden@bardetbiedl.org

bbs-uk-master-logo.png

UNITED KINGDOM

BARDET-BIEDL Syndrome UK

                 43 Balton Way, Dovercourt, Harwich,

                 Essex, CO12 4UP

                admin@bbsuk.org.uk

logo-asbbi.jpg

ITALY

Associazione Sindrome di Bardet-Biedl Italia

                 Via G.Matteotti 11
                 20866 Carnate (MB)

                info@asbbi.it

NEDERLAND

BARDET-BIEDL Syndroom Stichting

                 Keulvoet 12
                 8266KK Kampen

                info@bardetbiedlsyndroom.nl

©2020 by bbs-foundation.org - All rights reserved